Exodus 4:11
Cayla's Story continued
After the nurse took Cayla to the nursery, John and I had a few minutes alone. We talked a little, but not too in depth. Then he said he had to go do something (later I found out he had to go to radiation for his testicular cancer). Before he left they told us Cayla had to stay in the special care nursery because her blood sugar was low and her oxygen saturation was not good. So I didn't get to see her again until later on. I transfered to a room and then the kids came up. We had called Amanda at school when Cayla was born and she was so excited. John, Zane, Amanda and I went to the special nursery and saw the baby. One of the pics in "Cayla's greatest hits" is the one Amanda took of Cayla sleeping with her little heart hat on. I tried to nurse, but Cayla just couldn't breathe and eat at the same time. Then John tried to feed her with the same result. We didn't stay long because she was getting worn out. So Amanda went with Melissa and John took Zane to his mom's.
That night the pediatrician called and said, "the baby just can't eat and breathe at the same time so I am putting an iv in." That meant she had to stay in special care. I could go every three hours and hold her and feed her. John called and was very ill (from the radiation) and said he couldn't come back. I told him about the baby and he got even more upset. He sent his parents up to check on us. They got to go into the nursery and hold the baby and see her with the iv in. At least it was in her arm not her head. Still very sad and scary. The next morning my doctor came in and asked how everything was. When I told him about Cayla he automatically let me stay in the hospital. The pediatrician came in and said he was going to order a ct scan of Cayla's head to check for neurological damage. John was there by then and he was able to stay long enough to see Cayla and go with us when she had the scan done. He insisted that I get a wheel chair and he even pushed me down to the ct scan. It was very scary to see her go into the machine. But the whole time she was in special care, she was in an open air isolette. That helped me some. John left and said he would be back later on. John's mom took Zane to get a booster shot and then they came up. It was very hard to be in the hospital room with no baby. I would go to the nursery every chance I got. We never heard from the pediatrician the rest of the day.
That night John came back for the 9 pm feeding and he and I sat in the nursery together and talked about names. We had called her Becca, but I decided that was too confusing. So we had to pick something new. We finally decided on Cayla with a C. My mom was Carolyn and his is Carol. I also have a sister in law Carolyn and he has a sister Carrie and my first former mother in law was Carol too. We wanted to honor my mom especially, since she passed away in 2004.
The next morning, the pediatrician came in and said the ct scan showed areas where the baby's skull had not formed (lytic lesions) but he wanted to do an x-ray to see what it showed. Neurologically she was fine. Cayla would have to stay in the hospital for a while maybe. My doctor came in and said I had to go home. My insurance wouldn't pay for another day. But I could stay until midnight. So I really got upset. John called and I told him what happened and he got upset. He came in from work and we had some time alone. Then the doctor called and said the xray was clear and she could go home. John asked some questions of the pediatrician and that was that. I asked John if we could work things out but he said no and it turned to a huge fight. So he left and then called back and wanted to drive us home but felt he couldn't. He was very upset. I tried to get him to come back but he wouldn't. So Melissa drove us home. Later on John and his family came to see the baby at home. John left for New York with his girlfriend when Cayla was 9 days old. He has not seen her since.
Before her two month check up I had to take her for more xrays. Then on her two month appt. I found out she has cranisynostosis or cranial stenosis. This is a malformation of the skull. Her right coronal suture fused early. The doctor didn't seem concerned and said they only do surgery for cosmetic reasons and she doesn't look bad. I talked to John and we decided to get a second opinion. I saw a doctor in Lubbock and he said she will have surgeryat 6 months old. I go back tomorow to find out more and for Cayla to have a CT Scan and MRI. She will be sedated for those procedures. A lot has happened in her short 16 week life. I will post more about Cranial Stenosis later and will post about her trip to Lubbock when we return.
After the nurse took Cayla to the nursery, John and I had a few minutes alone. We talked a little, but not too in depth. Then he said he had to go do something (later I found out he had to go to radiation for his testicular cancer). Before he left they told us Cayla had to stay in the special care nursery because her blood sugar was low and her oxygen saturation was not good. So I didn't get to see her again until later on. I transfered to a room and then the kids came up. We had called Amanda at school when Cayla was born and she was so excited. John, Zane, Amanda and I went to the special nursery and saw the baby. One of the pics in "Cayla's greatest hits" is the one Amanda took of Cayla sleeping with her little heart hat on. I tried to nurse, but Cayla just couldn't breathe and eat at the same time. Then John tried to feed her with the same result. We didn't stay long because she was getting worn out. So Amanda went with Melissa and John took Zane to his mom's.
That night the pediatrician called and said, "the baby just can't eat and breathe at the same time so I am putting an iv in." That meant she had to stay in special care. I could go every three hours and hold her and feed her. John called and was very ill (from the radiation) and said he couldn't come back. I told him about the baby and he got even more upset. He sent his parents up to check on us. They got to go into the nursery and hold the baby and see her with the iv in. At least it was in her arm not her head. Still very sad and scary. The next morning my doctor came in and asked how everything was. When I told him about Cayla he automatically let me stay in the hospital. The pediatrician came in and said he was going to order a ct scan of Cayla's head to check for neurological damage. John was there by then and he was able to stay long enough to see Cayla and go with us when she had the scan done. He insisted that I get a wheel chair and he even pushed me down to the ct scan. It was very scary to see her go into the machine. But the whole time she was in special care, she was in an open air isolette. That helped me some. John left and said he would be back later on. John's mom took Zane to get a booster shot and then they came up. It was very hard to be in the hospital room with no baby. I would go to the nursery every chance I got. We never heard from the pediatrician the rest of the day.
That night John came back for the 9 pm feeding and he and I sat in the nursery together and talked about names. We had called her Becca, but I decided that was too confusing. So we had to pick something new. We finally decided on Cayla with a C. My mom was Carolyn and his is Carol. I also have a sister in law Carolyn and he has a sister Carrie and my first former mother in law was Carol too. We wanted to honor my mom especially, since she passed away in 2004.
The next morning, the pediatrician came in and said the ct scan showed areas where the baby's skull had not formed (lytic lesions) but he wanted to do an x-ray to see what it showed. Neurologically she was fine. Cayla would have to stay in the hospital for a while maybe. My doctor came in and said I had to go home. My insurance wouldn't pay for another day. But I could stay until midnight. So I really got upset. John called and I told him what happened and he got upset. He came in from work and we had some time alone. Then the doctor called and said the xray was clear and she could go home. John asked some questions of the pediatrician and that was that. I asked John if we could work things out but he said no and it turned to a huge fight. So he left and then called back and wanted to drive us home but felt he couldn't. He was very upset. I tried to get him to come back but he wouldn't. So Melissa drove us home. Later on John and his family came to see the baby at home. John left for New York with his girlfriend when Cayla was 9 days old. He has not seen her since.
Before her two month check up I had to take her for more xrays. Then on her two month appt. I found out she has cranisynostosis or cranial stenosis. This is a malformation of the skull. Her right coronal suture fused early. The doctor didn't seem concerned and said they only do surgery for cosmetic reasons and she doesn't look bad. I talked to John and we decided to get a second opinion. I saw a doctor in Lubbock and he said she will have surgeryat 6 months old. I go back tomorow to find out more and for Cayla to have a CT Scan and MRI. She will be sedated for those procedures. A lot has happened in her short 16 week life. I will post more about Cranial Stenosis later and will post about her trip to Lubbock when we return.
posted by Becky @ 1:36 PM
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